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Thursday, December 17, 2009

Btwn black and nothing

Sometimes, I'm not sure what to do. Just have no flippin' idea of how to respond, when to respond, if I should respond...Lord knows I try to love, but there are times when I feel like a stranger in my own home, Hell, I feel like a stranger in my own skin. I don't recognize myself, don't feel like myself, don't feel anything, and don't really like myself if I cared enough to even consider it.

At times like this, bathing is optional and not because I want to offend, but because I just don't care enough to make the effort. It's no wonder someone told me I looked like a homeless person for the simple fact that I did. And although I lived in a house with a legitimate address, I still felt homeless, like a drifter careening through the area like a dusty marble seeking the path of least resistance.

I'm sure lots of people have regrets, rue the missed opportunities, kick themselves for not getting that degree, not taking that job offer, whatever. How many people question whether they are a positive force for their kids when they feel a fifth wheel, fear their kids see them as a fifth wheel, as an embarrassment, as a wild-looking homeless slob? Tears do no good, only clearing a path through the grit on your cheeks and giving you a fucking "bash-your-face-in" headache that turns into a throbbing reminder of what was, what coulda been, what you are and what you aren't.

What can you do when you can't even put your damn shoes and socks on without help? What can you do when your own family doubts the seriousness and severity of your illness? What can you do when any kind of activity--taking out the garbage, shaving, having sex, kicking a soccer ball, sweeping a floor, reading a book, buying food--causes escalating pain that robs you of your breath, makes the smallest movement excruciating, brings gritted teeth and unseen tears welling in the eyes.

The pain, your ever-present companion, takes on a life of its own. It makes living a sequence of studied, mechanical moves so not to awaken the beast from its relative slumber. Still, the intensity required to keep it down grinds at your soul, like an erasure on a math paper in which you failed to study that particular equation, rubbed down, dirty, leaving tiny shards of the whole scattered around like human confetti. This sucks, it really really sucks.

If you take the medications prescribed for the break-through pain, you can no longer function in any capacity, as a family man, as a man, as a human being. You become a whole erasure again but with an erasure's measure of emotion. You forget conversations, you forget appointments, often you forget what day it is. You forget how to live. You forget who and what you are, what you were, what you should've been. You withdraw, hoping the shell is strong enough to protect you from outside forces. You miss your family, you miss your friends, you miss yourself because the person in that shell is nothing but a shell of what you wanted to be.

Pain. My only friend. I fucking hate you more than you can ever know.

3 comments:

  1. jr, i know your pain is constant, but your depression is taking over your life at this point....more so than the pain. you are relevant to your children...pain or no pain. depressed or not. the fact that you are HERE is relevant. you have much to teach them...about history. yours and the worlds'.

    i know if i say "hang in there", the words seem so trite. but, it's true. you've just gotta hang in there. i've been there...in the dark place where you are. not with the physical pain, no....but the depressed, darkness....i know that feeling. lots of people do. it does lift. and there are some meds that can help you. if you are already on some meds...think about having them changed, cuz they don't seem to be working. also, think about meeting with a shrink that specializes in people dealing daily pain issues. just a thought...but it might help.

    you, ellen and your kids have way so much love happening in that house of yours....you may not be feeling the love right now. but it's there....just know it

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  2. No one, despite what you believe, doubts the seriousness or severity of your disability. We just don't know what to do. We can't take it away or make you forget it. Sometimes maybe we're just trying to make things normal, mundane. And sometimes maybe we're overwhelmed by it all too.It doesn't mean you don't have a friend or that your family doesn't care.

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  3. To both of my commentators: Nothing you said doesn't make sense or is trite. Any response means at least someone is listening and that is as important as anything. I know people love me, I know people care, but that's after the fact and when Reason is in control.

    When Pain is in control, every sensory perception is altered as you both well know. One day at a time...thnkx

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